The day chronic pain entered my life has now taken an unwelcome and unwanted place in my memory alongside the happiest day: my wedding day, and the birthdays of my children. The 24 hours before it came would be the last pain-free day of my (basically) comfortable forty-five years and the beginning of a new life for me. A violent trespasser, its tortuous presence inhabiting my body, would always accompany my day-to-day experience from then on. I’ve come to call this presence, simply “the pain,” which began with a literal thorn in my flesh.
On that first day, I woke up at 4 am with an intense biting and stabbing sensation, near the back of my head and on the right side of my neck—it felt like someone had stuck a jagged knife in me. I struggled out of bed almost paralyzed by it and barely endured waiting for the local “urgent care center” to open. I told the doctor there that I had not had an accident or fall to account for it. And there was no relief—the pain killers he gave me barely made a difference.
After three months of tests I found out that my body had a congenital disease of the spine that caused disintegration of the soft discs cushioned between vertebrae, coupled with growing clusters of sharp bone spurs that acted like not-so-tiny needles pricking constantly at my nerves. In addition, I had problems with two vertebrae in the middle of my neck that had grown too narrow and were now closing up, combined with a lethal calcification of my spinal cord. The effects of all of this was the beginning of a deadening in the nerves controlling the muscles of my legs, arms and intestinal tract, which would most probably result in a slow process of paralysis of much of my body and its functions. I am a big guy. Within three months my wife could push down my outstretched right arm. I was weakening rapidly.
For those three months constant pain robbed me even of the comfort of sleep and made life almost unbearable. There was no physical therapy for this kind of problem, only surgery—a procedure that lasted eight hours under heavy sedation where the doctor literally broke my neck in order to free up the nerves and spinal cord, and then placed a device termed a ‘halo’ on my head. This halo was a horseshoe shaped metal ring fixed to my head by four spikes set into the bone of my skull and four rods attached to a plastic jacket that went down to my waist, keeping my head, neck and shoulders from moving. I wore this for four months, not being allowed to take it off, even to sleep.
Before my surgery and months in the halo, the doctor had comforted me with the prognosis that after this extreme trial, I would be as good as new. Then he explained the risks of death or paralysis while working on the spinal cord. And, while I survived the surgery and the grueling months in the halo (which were traumatic in themselves), for some reason my nerves and muscles didn’t relax when the halo was removed.
Indeed, my body tightened so much that I lived with a constant, crushing pain all around my head. It felt like a second invisible halo gripping in tighter and tighter. The pain often expanded to include my whole head, neck and back, with waves of near electric stabs shooting into my teeth on my worst days.
From that day I first met this suffering, my life began to lose its color. A sunny, blue sky was filtered through the lens of my agony; instead, I saw a picture that came out like an image accidentally printed without colored ink, filled with brooding shades of gray, black and white. The things that brought me joy—reading a book, listening to music, even the drive home along the beautiful river and woods we live on—were not cooperating anymore as sources of simple pleasure. Worst of all, it shook my confidence in God and I started to live in fear of the future and despair of God’s care for me. Pain and my response to it was powerfully forming me and re-teaching me about life.
What heightened my confusion about all this was the rapturous last six months before “the pain” where God was nearer to me than I had ever known in my life. I felt I had been reaping several years of learning to practice God’s presence and cooperate with him in a daily adventure of whatever opportunity to enjoy him that presented itself, waiting in line at the drug counter became a time to be still before God, taking interruptions to my plans as invitations to a surprise from God. I loved waking up to spend time with a scripture or reading a spiritual classic or studying the life of a Saint, returning to God throughout the day with a thanks or just keeping myself open to his Spirit, and closing the day with a restful examen, ready to do it all over again the next day.
All this had led to my teaching and preaching on spiritual formation and the disciplines, or the good life and how to get there. Much of this was due to having read and been able to be under the winning and warm influence of Dallas Willard. His view of God’s goodness and the good life he wanted for us, the “good news” of life in Jesus and the Kingdom of heaven had captured me.
But in life with pain, questions I had long thought answered for me—questions about God’s goodness, power and gracious involvement with me, my life’s very meaning and the possibility of enjoying it, as well as my own ability to persevere in suffering—were now all open for debate, and often that debate was not a civil one. I shouted a lot; there was even some cursing on my part. In my perception, steely silence was God’s only response. At midlife and with a good career both behind and in front of me, I had often wondered how life could get much better. Now I looked at the possibility of living out my days as a kind of prison sentence in my own torture chamber, my body.
I tried to find some comfort from scripture, turning to a chapter in Job and reading about Job feeling like God had picked him up by the neck and thrown him down on the ground, abandoned and in pain. That didn’t help. I wanted to grab somebody by the throat and ask why my own neck was suddenly my worst enemy.